World Duchenne Day

September 7, Sunday

World Duchenne Day
© ShutterStock
World Duchenne Day was established by the international community of organizations supporting people with Duchenne, a rare genetic muscle disease. The celebration aims to raise awareness about the disease, support patients and their families, and stimulate scientific research to find effective treatments.

Purpose of the celebration
The celebration aims to:

* Raise public awareness about Duchenne disease and its impact on patients and their families.
* Support research and development of new treatment methods.
* Create a global support network for patients and their loved ones.

Traditions and ways of celebration

* Organize educational campaigns and events to inform the public about the disease.
* Conduct charity events and fundraising for research and family support.
* Share stories of patients and their families on social media to increase understanding and empathy.
* Hold webinars, conferences, and meetings with specialists, patients, and community organizations.

Interesting facts

* Duchenne is a rare genetic disease that most often affects boys and causes progressive muscle weakness.
* World Duchenne Day helps unite efforts across countries to improve the quality of life for patients.
* The celebration highlights the importance of early diagnosis, scientific research, and support for families affected by the disease.

Official website

World Duchenne Day in other years

World Duchenne Day in other countries

This site uses cookies. By continuing to use this website, you agree to our policies regarding the use of cookies.