World Scleroderma Day

June 29, Sunday

World Scleroderma Awareness Day is observed annually on June 29. This day aims to raise awareness about scleroderma — a rare autoimmune disease that causes hardening and fibrosis of the skin and can also affect internal organs. The date was chosen in memory of the Swiss artist Paul Klee, who suffered from scleroderma and died on June 29, 1940.

Goals and objectives
The main goal of the day is to draw the attention of the public, the medical community, and authorities to the problems faced by people living with scleroderma. Priorities include:

* informing about symptoms and the need for early diagnosis
* supporting patients and their families
* promoting scientific research
* fighting stigma against rare diseases
* developing international cooperation in healthcare

How it is observed
In many countries around the world, informational and educational events are held. The format may include:

* online campaigns and posts with hashtags supporting people with scleroderma
* seminars, webinars, and lectures for medical professionals and patients
* interviews with doctors, activists, and patients
* charity events and fundraising for research
* "lighting up buildings" actions using symbolic colors (often blue and white)

Organizers and participants
Key initiators of the day are international patient organizations such as the Federation of European Scleroderma Associations (FESCA), as well as national foundations. Their activities focus on protecting patients’ rights, promoting medical standards, and providing psychological support.

Significance for society
Scleroderma is a disease with low recognition and limited treatment options, especially in later stages. Observing World Scleroderma Awareness Day helps to:

* reduce the time between the appearance of first symptoms and diagnosis
* develop international databases and research
* strengthen solidarity among patients worldwide
* improve quality of life through attention from healthcare systems

Symbolism
The image of the sun is often used as a symbol of hope, as well as blue and white colors, associated with purity, support, and international cooperation. Some events are accompanied by art actions and exhibitions reflecting the inner world of patients.

Conclusion
World Scleroderma Awareness Day is an important reminder that rare diseases require no less attention than common ones. This day unites doctors, researchers, patients, and activists in a shared effort toward a better future for everyone living with this diagnosis.

World Scleroderma Day – days left: 3. Create Countdown to Event

World Scleroderma Day in other years

2021 June 29, Tuesday
2022 June 29, Wednesday
2023 June 29, Thursday
2024 June 29, Saturday
2026 June 29, Monday

World Scleroderma Day in other countries