World day against Amyotrophic Lateral Sclerosis

June 21, Saturday

World ALS Awareness Day is observed annually on June 21. This day is dedicated to raising awareness about the disease, supporting patients and their families, and promoting scientific research and the search for effective treatments.

What is amyotrophic lateral sclerosis (ALS)?
ALS is a severe neurodegenerative disease that affects motor neurons—cells that control muscle function. Over time, individuals lose the ability to move, speak, swallow, and breathe. The disease is incurable, but symptoms can be alleviated and quality of life improved through comprehensive therapy.

Goals and objectives of World ALS Awareness Day

* inform the public about the symptoms and consequences of the disease
* break down the stigma associated with the diagnosis
* support initiatives to develop palliative care
* draw attention to the need for research funding
* strengthen solidarity with patients and their families

History and symbolism

* The idea for this day was proposed by the International Alliance of ALS/MND Associations
* The date, June 21, was chosen for its symbolism: the summer solstice represents light and hope even in the darkest times
* The color blue and the forget-me-not flower are common symbols of support and remembrance

How this day is observed

* solidarity and fundraising events
* awareness campaigns in media and social networks
* webinars, conferences, and meetings with neurology experts
* marathons and flash mobs in support of patients
* iconic buildings lit in blue around the world

Scientific and medical aspects

* currently, there is no way to stop the progression of the disease
* treatments focus on slowing symptoms and maintaining breathing, nutrition, and mobility
* research is actively ongoing in areas such as cell therapy, genetics, and new medications

Interesting facts

* The most well-known person with ALS was physicist Stephen Hawking, who lived with the diagnosis for over 50 years
* In 2014, the Ice Bucket Challenge became a viral social media movement and raised millions for ALS research
* It is estimated that around 450,000 people worldwide live with ALS

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World day against Amyotrophic Lateral Sclerosis in other years

2021 June 21, Monday
2022 June 21, Tuesday
2023 June 21, Wednesday
2024 June 21, Friday
2026 June 21, Sunday

World day against Amyotrophic Lateral Sclerosis in other countries