Rare Disease Day

February 28, Friday

Rare Disease Day is a day dedicated to raising awareness about rare diseases and supporting those who live with these conditions. It is observed annually on the 28th of February (or 29th in leap years) and aims to bring attention to the challenges faced by individuals with rare diseases and their families. Worldwide events are organized to increase the visibility of these rare diseases and provide support for those affected.

Goals of the Day
- Raising public awareness about rare diseases and highlighting the impact these conditions have on the lives of patients and their families.
- Supporting research into the diagnosis and treatment of rare diseases.
- Educating the public about the difficulties faced by people with rare diseases, such as delayed diagnoses and lack of appropriate treatments.
- Promoting the education of healthcare professionals about rare diseases and improving access to medical care.

History of the Day
Rare Disease Day was established in 2008 to bring attention to more than 7,000 rare diseases affecting millions of people worldwide. The day was chosen to fall on the 28th of February as a symbol of the rarity of these diseases and the impact they have on the lives of those affected. The goal is to promote scientific research and raise public awareness.

Main Activities
- Demonstrations and public events to increase the visibility of rare diseases.
- Seminars and educational programs for healthcare professionals.
- Television and online programs focused on rare diseases and progress in their treatment.
- Support for organizations and foundations dedicated to research and assistance for patients with rare diseases.

How is the Day Celebrated?
On this day, various events are organized to raise awareness about the issues related to rare diseases, as well as campaigns to promote research and treatment. It is also a day to support individuals living with rare diseases and their families, while increasing public awareness of the challenges they face.

Rare Disease Day plays a significant role in improving the quality of life for people with rare diseases and supporting scientific research to develop new treatments.

Rare Disease Day

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Rare Disease Day in other years

2022 February 28, Monday
2023 February 28, Tuesday
2024 February 29, Thursday
2026 February 28, Saturday

Rare Disease Day in other countries