International Lennox-Gastaut Syndrome Awareness Day

November 1, Saturday

International Lennox-Gastaut Syndrome Awareness Day
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International Lennox–Gastaut Syndrome Awareness Day is observed annually on November 1. This day aims to raise public awareness about a rare and severe form of epilepsy that primarily affects children.

History of the holiday
The holiday was established by international organizations supporting people with epilepsy and their families. Its goal is to unite the efforts of medical professionals, researchers, and the public to increase awareness of Lennox–Gastaut Syndrome (Lennox–Gastaut Syndrome, LGS). The day was first observed in 2013 and has since gained wide recognition worldwide.

What is Lennox–Gastaut Syndrome
Lennox–Gastaut Syndrome is a rare and severe form of epilepsy that usually begins in early childhood. The condition is characterized by multiple seizure types, developmental delays, and learning difficulties. It requires ongoing medical supervision and family support.

Purpose of the holiday
The main goal is to draw attention to the challenges faced by people living with this syndrome and to encourage scientific research and treatment development. On this day, the public is encouraged to:

* support families affected by the condition;
* spread accurate information about the syndrome;
* participate in charitable initiatives;
* express solidarity with patients and their families.

How it is observed
In various countries, information campaigns, lectures, charity events, and activities in medical institutions are held.

* Buildings and monuments are illuminated in purple — the symbol of epilepsy.
* Social media campaigns and themed hashtags such as #LGSAwarenessDay and #CureLGS are launched.
* Medical organizations hold online conferences to discuss new methods of diagnosis and therapy.

Symbolism
The color of the day is purple, representing hope and support for people living with epilepsy. The butterfly is also used as a symbol — representing both fragility and resilience.

Interesting facts

* Lennox–Gastaut Syndrome occurs in approximately 1–2% of all people with epilepsy.
* In most patients, the condition manifests between the ages of 1 and 8.
* Despite the complexity of treatment, modern medications and innovative approaches can improve the quality of life for patients.

International Lennox–Gastaut Syndrome Awareness Day is a day of support, understanding, and hope for all who live with this diagnosis, as well as a reminder of the need for further research and public awareness.

International Lennox-Gastaut Syndrome Awareness Day in other years

International Lennox-Gastaut Syndrome Awareness Day in other countries

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