National Amyloidosis Day
May 8, Thursday
History of the day
The day was established in 2016 in Australia by Trisha Gardiner-Wilson in memory of her husband Adam Gardiner, who passed away from AL amyloidosis. In collaboration with the Amyloidosis Centre in Westmead and the Adam Gardiner Fund, National Amyloidosis Day was officially registered. In the same year, Jade Vincent proposed using a red ribbon with the inscription "Amyloidosis Day, May 8" as a symbol of the day, which quickly gained popularity among patients and their families.
Goals and importance
The main goals of National Amyloidosis Day include:
- Raising awareness about the symptoms and risks of amyloidosis
- Promoting early diagnosis and treatment of the disease
- Supporting patients and their families through awareness campaigns and fundraising
- Drawing attention from the medical community to the challenges of diagnosing and treating amyloidosis
Since amyloidosis is often diagnosed late, timely detection and intervention are crucial to improving outcomes for patients.
How to get involved
You can support the initiative in the following ways:
- Share information about the disease on social media
- Take part in charity events and awareness activities
- Wear a red ribbon on May 8 in solidarity with patients
- Donate to research and patient support through dedicated foundations
National Amyloidosis Day is an opportunity to unite efforts in the fight against a rare but serious disease.